Juan Wulff shares his story

August 19, 2017

 This week on POZ I AM Radio, I will be sitting down with Juan Wulff. Juan was one of the facilitators at the Brotherhood Retreat that I attended this past July in the Poconos PA. I instantly knew when I met him that I wanted him to come on the show and share his story.  Here is a little about Juan in his own words.

 

My name is Juan Wulff

 

I was born in Venezuela in 1964, I was diagnosed with HIV on June 24, 1986 at 22 years old and have lived with this guest in my body for 31 year or more.  Four years earlier in 1982 I had Hodgkin’s disease which was an experience that taught me how to navigate life altering experiences like HIV; I never really thought that I would die, but all the news when I was diagnosed said the longest prognosis was one year or maybe two. I never thought I’d live this long.

 

Since my Diagnosis I’ve had chickenpox for the first time when I was 30 years old with 67 T-cells; 10 years later I was being treated for high-grade rectal dysplasia which almost became rectal cancer, but thanks to an excruciating experimental treatment, I cleared that in three years.  The cancer Radiation Therapy from Hodgkin’s’ Disease damaged my heart over the last 35 years and I had Valve Replacement Surgery in September of 2015.  Lastly, in March I was diagnosed with Non-Hodgkin’s Lymphoma and I’m now at the tail end of this Chemotherapy treatment. This kind of Lymphoma is common amongst long time survivors of HIV who’ve been taking HIV medications for a long time.

 

I feel this time the Lymphoma has brought a purpose to my life I hadn’t realized, I’m documenting this process and doing my best to get money out of the medical establishment because then the patient takes a back seat.  I’m not sad or bitter about these experiences, they’ve shaped who I am today and have brought into my life a Massage/Bodywork, Breathwork and Spiritual Coaching practice that supports me and those I serve.

 

Don't forget to join us live Sunday August 20th a 2pm EST

 Listen to Juan's interview

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